Showing posts with label fatal food allergy reaction. Show all posts
Showing posts with label fatal food allergy reaction. Show all posts

EpiPen vs Auvi-Q...And I Mean That in the Nicest Way

EpiPen and Auvi-Q
We now have EpiPens and Auvi-Q's in our house. Of course this may not work for every household. It could be confusing for younger children to have two different epinephrine devices. It may be disorienting to some caregivers. But, for us, it works to have both. There are times when it's easier for me to fit Auvi-Q in my favorite small purse. 

Other times, the shape of the EpiPen works better. 

Size of Auvi-Q
But, what I most appreciate is having choice. EpiPen is celebrating its 25th birthday this year. While we've seen a few other devices designed to treat anaphylaxis over the years (think Twinject and Adrenaclick), we haven't seen any new innovation- until Auvi-Q came on the market last week. The shape is remarkably different than anything else we've seen and a voice talks the user through the procedure, much as a defibrillator (AED) does.

When I called my doctor's office earlier this week to ask for an Auvi-Q prescription, they said, "Would you spell that please?" A nurse called back a short time later to say that they had a training on Auvi-Q coming up in a few days and that they didn't yet have the prescription information entered in their computer. They manually called in my prescription to Target. 

I'm also sending in some trainers to the director of our school nurses so she can share it at next week's nursing staff meeting. It's important to tell schools, daycares, babysitters and others if you've got an Auvi-Q for your child as they may search for the traditional shape of an EpiPen.

Price of the new Auvi-Q has been a hot topic. Each prescription comes with two devices and a trainer. I paid $72.74 for my prescription that was covered by insurance. By comparison, I pay $48.43 for EpiPen. This time, I only paid $25 for Auvi-Q because I printed a coupon. The coupon can be used twice and offers a $25 co-pay for prescriptions covered by insurance, or $60 off for self-pay customers. Honestly, that is a greater price difference than I expected. Our new Auvi-Q devices don't expire until April 2014, but as our EpiPens expire, we'll need to decide if the extra cost is worth it to us.

We need companies like Mylan and Sanofi and we need independent inventors like the Edwards brothers to keep us informed and to bring innovation and choice. Until the day finally comes when we no longer need to fear food, bees, latex and anything else that may lead to anaphylaxis, there's room for pioneers and options.   

Auvi-Q Prescription
 Will you have both devices in your house?

Food Allergy and Why Two Doses of Epinephrine May Be Necessary

A recent study reported in the Journal of Pediatrics determined the need for people with food allergies to carry multiple doses of epinephrine.The study followed 605 children (median age 5.8) to find out how many of them needed a second dose of life-saving medication after suffering a food related allergic reaction. Twelve percent of patients needed the second dose, causing the researchers to support the recommendation of carrying two doses of self-injectable epinephrine.

Now, 12% doesn't seem like a high number to me, but how are you to know if you or your child require that second dose? At this point my child carries one epi to school. A second one is in the nurse's office. When traveling, we carry multiple epis and there are several in our house.

For those interested in two dose medications, Twinject® offers a back-up dose. Their site suggests that 20% of reactions require a second dose. Since both doses are in one pen, the Twinject can be used in a single with carrying pouch. Our allergist has always prescribed the Epi Pen®, but I plan to discuss other options.

It's on the list...

What brand of epi do you use? How many pens do you have?


Food Allergy Show on Lifetime Televisions's Balancing Act

Tomorrow morning, Tuesday, Sept. 21, The Balancing Act, on Lifetime will feature a show on food allergies. The show airs from 7-8 am ET/PT. Set your TiVo, your DVR, or plan to grab a cup of coffee to watch it live. The program will feature Leandro de Armas, this year's Heart of FAAN Child Ambassador, and an interview with a father who lost his son as the result of a fatal food allergy reaction. FAAN’s Vice President of Research and General Counsel, Maria Acebal, will also speak. A demonstration of how to use an epinephrine auto-injector is part of the presentation.

This show is a great opportunity to inform and educate grandparents, friends and others about food allergy. Spread the word!