So, this is it. The final installment of 11 year old Brett's video diary of his participation in Children's Hospital of Boston's milk allergy study. He's been participating in a desensitization study getting small amounts of milk over a period of time. Six months have passed since he started. This video tells the end. Has he been cured of his milk allergy, or must he continue to avoid milk?
So, go watch it. Then come back so we can chat.
Go on...
Tick Tock
I'll wait right here...
See, still here.
Okay, so you've seen it? Cause spoiler alert right here. The outcome is about to be revealed.
Amazing, right? This milk allergic boy is cured! He can drink milk and is eager to participate in more food allergy studies so he doesn't have to read labels any more.
This is incredible news for all of us who care about someone with a food allergy. We're getting there. Maybe our kids won't have to worry about their children being diagnosed with food allergies. Wouldn't that be wonderful?
What did you think of the video?
15 comments:
I just found your blog today and this post is amazing! I pray everyday that my son will be able to have milk again someday and now I can't wait for this treatment to be available!!! To go out for ice cream with him will be a dream come true.
I know. This news is so promising! We dream about cheese pizza for my little guy...
We are currently going through an egg allergy desensitization therapy for our 6 year old son. We started today and I was so nervous! I hope we can say he is also cured of his allergy 6 months from now. The freedom to stop reading food labels - what a dream!
My 5 year old son is currently going through milk desensitization in Dallas, Texas. We are very hopeful that one day he will be safe.
My son Nathan finished milk desensitization in September through Dallas Allergy and Immunology. We live in Iowa so the weekly trecks to Texas for 8 months was rough but in the end...he is cured! His medicine is 8 ounces of milk each day to make sure he stays desensitized but he eats whatever he want now. No more label reading. Pizza parties, ice creat and cake at birthday parties. He is six and for the first time got to go trick or treating, he got to go to a parade and pick up any of the candy they threw his way. He can eat at a table with the other first graders. Hiw world has changed more socially probably than anything. Thank god for Dr. Wasserman in Dallas!!!!
This is by far the best looking site I’ve seen.It was completely easy to navigate and it was easy to look for the information
I needed. Fantastic layout and great content! Every site should have that. Awesome job. Thank you very much for sharing.
My son just finished a 2-year milk desensitization program in San Diego. We started just before his senior year in high school because of the fear of going away to college with a severe milk allergy. We got him up to 3 ounces before he left for college. This amount (which he consumed daily) greatly reduced the chance of having a severe reaction to accidental ingestion of milk. This summer he went from 3 ounces to 8 ounces in about 2 months. As of a few days ago, he is drinking 8 ounces daily and we are thinking that he might be able to follow a regular diet. His first attempt: 4 homemade chocolate chip cookies that a friend's mom had made. No reaction. He still sometimes gets an itchy throat when drinking the milk, but we hope that will go away. An amazing treatment. As you can tell, we took it very slow! But it is worth it.
Joyce- Thank you for sharing the exciting progress of your son overcoming his milk allergy! I'm feeling so hopeful for all our kids with milk allergy.
Hi, We are starting the desensitization therapy of my 8 years old daughter next week. Pray for us. Reading your comments has been very encouraging.
my son is 10 weeks thru program and so far so good.
Very thorough article with some interesting points raised – not entirely my thing, but there you go.
This is Kyle's mom again. Kyle was drinking 8 oz. of milk a day (also as his medicine) during the summer of 2011 and clearly was desensitized. He is away at college and decided to stop, since he didn't like the way it made him feel (always a bit of an itchy throat, sometimes upset stomach). So, he is avoiding milk again completely. I suggested that he drink just one ounce per day (a shot), but he isn't doing that. I guess at some point he will be a good test to see if the desensitization lasts if you don't continue to drink milk. Prior to this, he was extremely allergic to even the slightest trace of any dairy with an anaphylactic reaction.
Hi Joyce,
Thanks so much for sharing your son's experience.
I've been watching the news about milk desensitization and I have some concerns about something I read recently. Dr. Robert Woods said, that "only eight of 32 children who received treatment three to five years earlier at Johns Hopkins were still free of symptoms when ingesting milk. Five can’t touch it, and the rest have occasional to frequent reactions to milk".
This was disheartening and doesn't offer great long-term statistics right now. I'm guessing you and your son have stayed in touch with his allergist in terms of how to proceed from here? The allergist may recommend no ingestion for now.
Best to you and your son. Please keep us posted when you think about it. This is all new treatment options and we're all learning from one another.
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