Teenagers and Food Allergies- A Troubling Time

A recent survey of food allergic teens shows some surprising results. Of those surveyed, very few were troubled by having to carry epinephrine or by having to wear medical jewelry. What troubled adolescents with food allergy the most were:

• being a burden to others who may need to accommodate their allergy.
• feeling left out in social situations where eating is involved.
• not feeling supported by their schools in terms of the school educating others about food allergy.
• stress involved in eating in restaurants and while traveling.

Teens with food allergy are a target group of particular concern because they have a higher risk of death associated with anaphylaxis. This study sheds light on the specific concerns within this age group so that education and counseling can help teens deal with their food allergy concerns.

What can we do to help improve the quality of life for food allergic teens?

• Help our food allergic children, pre-teens and teenagers find the words to explain their allergy confidently and matter-of-factly to others.
• Provide our kids and teens with tools to use during social situations where food is served. This may mean providing safe food for all or suggesting your teen eat before the event and bring a snack to eat later.
• Continue educating and advocating at all school levels- including high school. Make sure school officials understand food allergy. Ensure your school has a food allergy management plan. Encourage discussion of food allergy in health and other relevant classes so students learn of the symptoms and dangers.
• Push for legislation within the restaurant industry to require proper accommodations for those with food allergy.
• Encourage your teen to seek counseling if needed and to be involved with others who deal with food allergy. FAAN Teen is a great resource where teens share their experiences and tips.
• Share books such as Allergy Information for Teens: (Teen Health Series) and Fatal foods:find out how one teen copes with her allergy to peanuts.: An article from: Scholastic Choices

Teens are stressed about their food allergies. We can all help decrease this stress and provide a safer environment for this group.

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Don't forget to support FAAN’s bid to win grants from the Pepsi Refresh Project for Fund a Cure for Life-Threatening Food Allergies.
There are three ways to vote through Dec. 31:
1. Vote on the Pepsi Refresh Website:
2. Text 104004 to Pepsi (73774)
3. Vote on Facebook with the Pepsi Refresh app

Food Allergy Alert- Recall of Allergy Medications

This is getting tiresome and time consuming, but there has been another recall of medications that may affect the allergy community. All Benadryl Fastmelt products, as well as Jr. Motrin, have been recalled by McNeil Consumer Healthcare.

Go check your medicine cabinet and then check here for details of the recall.



For a food allergy reaction, the Fastmelt tablets are not ideal. The liquid form of Benadryl is recommended. Consider the Benadryl pre-filled spoons- we keep one of these in the Epi-Pen waistpouch- for quick and easy use.

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Don't forget to support FAAN’s bid to win grants from the Pepsi Refresh Project for Fund a Cure for Life-Threatening Food Allergies.
There are three ways to vote through Dec. 31:

1. Vote on the Pepsi Refresh Website:
2. Text 104004 to Pepsi (73774)
3. Vote on Facebook with the Pepsi Refresh app

Register for Food Allergy Teleseminar This Wednesday

Gina Clowes, of Allergy Moms, is offering a free workshop via telephone to discuss the holidays and food allergy issues. The workshop is being held today, Wednesday, Dec. 1 from 2-3 pm EST (11 am Pacific). Gina encourages everyone to register, even if you can't participate in the call as all registrants will receive a link for a recording of the call.

Register here!

Airplane Travel With Food Allergies

We flew cross-country over the Thanksgiving holiday. We were booked on 3 Southwest flights for our trip. Southwest does offer peanuts for their in-flight snack, but will make a substitution upon request. As we were flying with dairy, egg, peanut and tree nut allergies, we at least take advantage of their "no-peanut snack", providing some sense of security.

For those of you who've never flown Southwest with a peanut allergy, here's what to do:

• Call Southwest a day or two before the flight to alert them of the peanut allergy. If booking your tickets online, on the "Southwest Airlines Payment and Passenger Information" screen, click on the link to "Add/Edit Disability Assistance Options."you can make note of the allergy. I'd still call prior to the flight.
• Speak with a Customer Service Agent (CSA) upon arrival at the airport. You will then be given a "Peanut Dust Allergy Document" and the CSA will alert the Boarding Agent to stock the plane with an alternative snack.
• This "Peanut Dust Allergy Document" entitles the family to pre-board, allowing a family member to wipe down a seating area if necessary.
• Upon boarding, the Peanut Dust Allergy Document is handed over to the on-flight crew.

That's it. Easy!

We were on 3 flights and the procedure worked perfectly. There were snack options for everyone ranging from pretzels to crackers to Lorna Doone® cookies, Ritz® cheese crackers and pita chips. Several of these snacks contained my child's allergens,  but we read labels and chose accordingly. I know many food allergic flyers choose not to eat anything in-flight, and that's fine too. Of course one can always bring safe snacks from home.

I like the way Southwest handles peanut allergies. It saves me the worry of 150 people opening packets of peanuts and releasing peanut dust all over the cabin and I think most people don't even notice the substitution. When the man in the row in front of us requested peanuts for his snack, the flight attendant said, "We're a peanut-free flight, but ask me when you're getting off the plane and I'll give you a complimentary pack of peanuts. Would you like crackers or cookies now?".

Yeah Southwest!

Food Allergy Jingle Raises Awareness About Safety During the Holidays

Two young girls, calling themselves the "Peanut Free Players" sing a holiday themed song about food allergies. Take a few moments away from your holiday planning, pull the kids up to the computer and enjoy this clever jingle.

A Food Allergy Friendly Thanksgiving

I've got a section on my site devoted to allergy-friendly traditional Thanksgiving dishes. Please check out the "Holiday Dinner Menu" as you finalize your last minute recipes. If you're considering brining your turkey, first read this article.

Food Allergy Assistant wishes all of you a safe and delicious Thanksgiving dinner!

Food Allergy Program for Schools

The Food Allergy and Anaphylaxis (FAAN) has published a newly revised "School Food Allergy Program". It is now available for purchase. This updated version includes Safe@School®, a CD-Rom, which provides educators with a slide presentation and talking points to train others about food allergies. This comprehensive guide is for schools at every level with information geared toward principals, teachers, school nurses, food service staff, and parents.

Is this something your school could use? Talk to your principal, school nurse or parent teacher organization if you think this would be a valuable resource for your school. At $80 ($75 for FAAN members), you may believe it to be a worthwhile holiday gift for your child's school.

Peanut Allergy: What Do You Think of Banning Peanuts?

http://foodallergyassistant.blogspot.com/2010/11/food-allergy-news-from-annual.htmlOh, Dr. Bahna, president of the American College of Allergy, Asthma and Immunology (ACAAI), has sure stirred up a pot of trouble. As mentioned in a previous post, the ACAAI has been conducting their annual meeting over the past few days. Perhaps the most publicized information coming out of the meeting, has been comments about peanut bans made by Dr. Bahna. Check out this report from NPR's Health Blog. Of particular interest to me are the dozens of comments which rest on both sides of the issue.
 
I don't know if it's because we were originally dealing with nearly ten different food allergens, but I've never been an advocate of food bans. However, I am an advocate of making reasonable accommodations for medical needs. Therefore, when I contact an airline and request that peanuts not be served on our flight due to a peanut allergy, I expect that reasonable request to be honored. If suddenly those orange cheese curls became the popular in-air snack, I'd be just as adamant that those snacks not be served on our flight either. Imagine a huge cloud of cheese dust circling over my milk allergic's child head- a nightmare!

I am in favor of school cafeterias providing safe places for all children to eat lunch. If that means a separate safe table for my child, I want to be able to make that reasonable request.

Yes, the topic of food allergies can cause great debate, but for those of us who live with a food allergy, there is no debate. Anaphylaxis can be fatal and we should expect reasonable accommodations to be made to prevent a reaction.

Food Webinar on Food Labels May Inform Those With Food Allergy

The Imtermational Food Information Council Foundation (IFIC) is holding a webcast about something I read multiple times each day (no, I'm not talking about e-mails)- food labels.

Speakers ranging from dieticians, college professorsa and lawyers will discuss the rules and regulations that support the use of label claims and look at research into how people use food labels when making choices.

Specifically, discussion will be around:

• FDA guidelines for food labeling and health claims
• The Federal Trade Commission's views of health benefit claims
• A look at food culture and consumer behavior

The webcast is today- 9:30 am ET. If interested, you must pre-register. There are continuing education credits available for those who qualify.

It would be great for the food allergy community to have a presence in this webinar

 

Food Allergies and News From Annual Conference of ACAAI

Last week, the American College of Allergy, Asthma and Immunology (ACAAI) held its annual meeting in Phoenix. The organization, established in 1942, is made up of over 5500 health professionals and is dedicated to improving patient care in the areas of allergy and immunology.

Presenters at the meeting shared studies and research, much of it pertaining to food allergy. I've tracked down a few pieces of relevant presentations. As more is released, I'll share it. In the meantime, this will be of interest to those of us in the food allergy arena:

In a session titled "The Ability of Adults and Children to Visually Identify Peanuts and Tree Nuts", Co-authors: Todd L. Hostetler, MD, and ACAAI Member Bryan Martin, MD, (The Ohio State University/Nationwide Children's Hospital) report on a study in which only 50% of nut allergic people (ages 6 and up) could identify a picture of the nut they are are allergic to.

In "Adverse Reactions to H1N1 Vaccine after Tolerating Seasonal Flu Immunization", Amber M. Patterson, MD, (The Ohio State University/Nationwide Children's Hospital) says that tolerance to flu vaccine one year does not suggest future tolerance as the amount of egg in the vaccine varies widely.

In "If Kissing or Sex Leaves You Tingly, Is It Love or Allergies?" Dr. Sami Bahna talked about how allergic reactions to kissing and other intimate acts are more common for those with food and medication allergies.

Something else I've been watching for awhile is the use of Chinese herbs as a cure for peanut allergy. There was a session at the meeting, "Chinese herbs can complement proven allergy treatments", in which it was reported that Food Allergy Herbal Formula, previously shown to reduce anaphylactic reactions in peanut allergic mice, has now been shown to be safe for humans. Sounds promising!

Dr. Bahna, president of ACAAI, raised the ire of some in the food allergy community with several statements about bans 9or not) of peanuts in schools and airplanes.  Check it out and see what you think.

For more information on the ACAAI annual meeting, scroll through the Twitter conversation. More information about the organization can be found at their website.

Did any of these reports have a specific interest for you? I'm thrilled with the continued research on all fronts of food allergy. Let's continue to talk about egg allergy and flu vaccine and peanut allergy bans and promising food allergy cures. Let's keep making forward progress!

Fund A Cure for Food Allergies

This month, FAAN is again participating in the Pepsi Refresh contest. The group is asking for $250,000 to find a cure for food allergy. If this idea makes it to the top two ideas, we all win! It is currently ranked 59th. Your vote is needed. The vote of your parents, friends, neighbors, entire e-mail distribution list is needed. Imagine what a quarter of a million dollars for food allergy research could do!

You can vote every day all month. Please go to the Pepsi Refresh contest and vote today. Or you can text 104004 to Pepsi (73774). Then tweet it, FB it and get the word out to others. Anyone can vote. The contest ends November 30.

Last month, FAAN asked everyone to vote for Camp TAG, food allergy summer camps, in the Pepsi Refresh contest. Camp TAG didn't win, but since it made it to the top 100, there is still a chance for it to get it into the top two this month.

Food Allergy and Why Two Doses of Epinephrine May Be Necessary

A recent study reported in the Journal of Pediatrics determined the need for people with food allergies to carry multiple doses of epinephrine.The study followed 605 children (median age 5.8) to find out how many of them needed a second dose of life-saving medication after suffering a food related allergic reaction. Twelve percent of patients needed the second dose, causing the researchers to support the recommendation of carrying two doses of self-injectable epinephrine.

Now, 12% doesn't seem like a high number to me, but how are you to know if you or your child require that second dose? At this point my child carries one epi to school. A second one is in the nurse's office. When traveling, we carry multiple epis and there are several in our house.

For those interested in two dose medications, Twinject® offers a back-up dose. Their site suggests that 20% of reactions require a second dose. Since both doses are in one pen, the Twinject can be used in a single with carrying pouch. Our allergist has always prescribed the Epi Pen®, but I plan to discuss other options.

It's on the list...

What brand of epi do you use? How many pens do you have?

Food Allergies and Baking With Milk and Egg

As I've reported, we're adding tiny amounts of egg and milk in baked form to my egg and milk allergic child's diet. As all these food allergy transitions have been over the years, it's been challenging finding recipes that work. It sounds easy- just add an egg or some milk to any recipe.

It's not that easy. We're trying to stick to the guidelines of baking foods for at least 30 minutes at a minimum of 350 degrees. That eliminates most cookies and muffins and primarily leaves us with breads and cakes.

We've been eating an awful lot of chocolate cake in our house recently.

I'm in the routine now of having one baked good that contains one egg and one that contains a tiny amount of milk. My child eats egg one day and milk the next. The egg recipes are easier. Most cakes call for two eggs. For now, I use one regular egg and I substitute the other- usually 1 tablespoon flax seed mixed with 3 tablespoons water. The milk recipes take an advanced degree in chemistry with a minor in math. My childis off the scale allergic to milk so we're proceeding with extreme caution. I found a cake recipe that calls for 1/2 cup milk. I use 3 grams (our food scale comes in handy here) of dried milk powder mixed with an 1/8th of a cup of water. Then I add 3/8 cup of soy milk.  The plan is to gradually increase the amount of milk powder.

So, I'm certainly not complaining. Any time we can add more options to this food allergy diet is cause for great celebration, but I do see a need for a new kind of cookbook as more people are able to tolerate baked milk and egg.

In the meantime, we'll have to share.

Food Allergy Awareness in the Restaurant Industry

Okay, it has a funny name...MenuTrinfo...but I like the concept. MenuTrinfo stands for Menu, Nutrition, Information. Their mission is to help the restaurant industry provide better and clearer nutrition information to restaurant patrons.

MenuTrinfo just announced a series of webinars, free and open to any interested party. The first one is Nov. 16  from 11-11:30 am EST. The topic is "Practical Approaches to Special Diets and Nutritional Labeling". Betsy Craig, MenuTrinfo’s founder, will focus on current dietary trends, food allergy management, status of menu nutritional labeling legislation and resources where restaurant owners can turn to for help.


Sign up on their website if you'd like to participate. Feel free to pass this information along to your favorite restaurant. Educating restaurants in the area of food allergy, safe food handling and nutrition labelling is a win-win for all of us.

Food Allergy Challenges for Baked Egg and Milk

I just baked a cake. It has an egg in it. A real egg for my egg allergic child! Last night I baked bread in the bread machine. I put 15 grams of dried milk powder in it. Real milk for my milk allergic child!

I haven't shared anything about this nearly 3 month journey because like all journeys, it's had plenty of bumps in the road and wrong turns. Frankly, I feel like we've stepped off the road and we're ploughing our way through uncharted territory. It's scary. It's exciting. We continue to move forward.

This food allergy journey began in July 2010 when we made an appointment to do a baked egg challenge in our allergist's office. As instructed, I baked an angel food cake with 12 eggs. My egg allergic child needed to eat one piece to get roughly one egg. There was much anxiety leading up to the appointment. It's hard to convince a child to eat something after telling them for 10 years to never eat it. The anxiety made the appointment difficult. Physical symptoms were hard to separate from symptoms of anxiety. The challenge was not completed. We left the office not knowing if there had been an allergic reaction.

Over the next few days, we, the parents, decided to use egg in baked products- just one egg in a whole cake for example. Our allergist was aware and not totally comfortable with the plan, but acknowledged that we had the tools to handle a reaction if there was one.

There wasn't a reaction.

For several months now my egg allergic child has been eating baked goods containing one egg that have been baked for approximately 30 minutes.

So, we decided to tackle baked milk. We wanted to use a small amount of dried milk powder in a batch of muffins. For the first serving, we decided to go into the allergist's office. This wasn't a traditional food challenge as technically we weren't using enough of the allergen, but the reassurance of having a doctor close by was helpful. My milk allergic child was able to eat a whole muffin that contained 0.33 grams of dried milk powder. As per the allergist's instructions, we've continued to keep milk powder in the diet over the past week.

This experience has been fraught with anxiety for all of us, but we hope we're doing the right thing in the long run. Our efforts are two-fold: get missing nutrients into the diet and begin to introduce the allergen slowly to allow the body to recognize it as okay.

There continues to be moments of, "I think my mouth is tingling" and "What if I can't breathe after I eat this?". We work through each situation as it comes up with as much confidence as we can muster. We're just parents trying to do the right thing by our child.

I certainly can't recommend this method, but I can recommend an open dialogue with your allergist. The research is coming in quickly and it's hard to keep up with the latest recommendations. Talk to your doctor and make a plan that is best for your child and your family.

I'll keep you posted on ours and hope you'll keep us posted on yours. We can all learn from one another.

Food Allergy Passed on Through Donated Organs and Bone Marrow Transplants

I recently posted a blog at Peanut Allergy.com that may be of interest. Check out "Peanut Allergy Passed Through Organ Transplant".

Go ahead...I'll wait...

I know- strange right? While bizarre, hopefully it will lead scientists to some answers for us about how food allergy works in the body.

Final days to vote for Camp TAG in the Pepsi contest. Summer camps for kids with food allergies...nice!

Nestle Recalls Popular Halloween Candy- Beware!

While searching through your child's bag after a night of trick or treating, be aware that Nestle® has recalled their fun size packages of Raisinets due to undeclared peanuts. Check here for the specifics on the recall.

Are you getting regular recall alerts for foods that have been contaminated with allergens? The scary thing is that I receive numerous recall announcements each week. There are many sites to help you stay on top of these alerts. The U.S. Food and Drug Administration offers e-mail notices, Twitter announcements, and of course "there's an app for that" for food and drug recalls. For specific food allergy alerts, sign up on FAAN's site. 

Don't forget to vote for Camp TAG today!

Food Allergy Products Discounted for Big Savings

Dealing with food allergies sure can be expensive, can't it? From special allergen-free foods, life saving medications and products like medical bracelets, it's not cheap to be safe.

 

Enter FAAN's E-Discount Place. Here are just some of the great offers you'll find:

• 15% off at Divvies
• up to 25% off at MedicAlert
• 15% off at Sweet Alexis
• 10% off at Vermont Nut Free
• Free copy of Allergic Living Magazine

So, check it out and start the week off with some money-saving offers.

And don't forget about Camp TAG. Register your vote for this idea to fund allergy-friendly camps across the US. Vote every day through Oct. 31. I just placed my vote!

Easy Fundraising for Food Allergy Research

Here's an easy way to raise money for FAAN (Food Allergy and Anaphylaxis Network)- rate restaurants.  AllergyEats counts on peer review to provide a listing of allergy-friendly restaurants across the United States. The more people who participate in the ratings, the more valuable it will be for all of us. The database currently lists over 600,000 eating establishments.

To help, simply go to AllergyEats, sign up, and rate restaurants. For every restaurant rated, AllergyEats donates money to FAAN.

Simple and effective. I like it!

Another great thing to do today- CampTag is currently #32 in the Pepsi Good Idea Contest. Vote every day until the end of October for the "good idea" of opening food allergy friendly camps across the country!

Now, don't you feel empowered about all the good things you can do for those with food allergies?

Enjoy your day.

Support Funding for Food Allergy Research

I am so excited about all the food allergy research the past couple of years! As I've mentioned before, we've finally exited the black hole, where for nearly 10 years, there was very little study in the area of food allergies. The message we were all given was, "if you're allergic to it, avoid it". That's it. There were no other options.

Finally things are turning around.

Dr. Robert Wood, Director of Pediatric Allergy and Immunology at The Johns Hopkins Children’s Center, is the Principal Investigator in 24 clinical studies in hopes of learning more about food allergy and finding a cure. From studies into the use of oral immunotherapy and sublingual therapies, to research into the effective ways to deal with adolescent food allergies to decrease deaths in this high risk group, Dr. Wood and his team are forging ahead on many fronts.

So, how can we help?

Consider a financial contribution to Dr. Wood's research team. I know- money is tight for everyone, but as we look ahead to the hoilday season, I can't think of a better gift for our children (and adults) with food allergy than hope for a cure. When grandparents ask what they can give your kids this Christmas, consider asking them to make a contribution in your child's name. Rather than buying one more action figure, take that money and send it off to be used for research.

If you are able to make a financial contribution, make a check payable to Johns Hopkins Children’s Center and send it to:

Johns Hopkins Children’s Center
Development Office
Attn: Jennifer Balzano
100 N. Charles Street, Ste. 200
Baltimore, MD 21201

Be sure to include a note with your donation stating that your gift is in support of Dr. Wood.

Just think, our dollars can go toward a cure for food allergies. No more worrying about cross contamination and allergic reactions. No more label reading for allergens. No more kids feeling left out at birthday parties and other celebrations.

I can't think of a better investment.

Flu Vaccine for People With Food Allergy

The American Academy of Allergy, Asthma & Immunology (AAAAI) has issued a statement about egg allergy and the flu vaccine after re-examining three studies. The conclusion?

We need more studies.

And thus a multi-center clinical trial is presently underway in the US.

Really? We still don't have enough information on this?????

Now, there is some good news. Many vaccine manufacturers are listing the amount of ovalbumin (egg) on their inserts. This means doctors can seek out low ovalbumin vaccine for their egg allergic patients.

The other finding is that most people with egg allergy do tolerate the vaccine. However, the numbers of severely egg allergic subjects in the study was low, and so it is with caution that researchers can recommend the flu vaccine to this sub-group.

So, it makes sense to explore this again this year. Talk to your allergist. Can they get low egg vaccine? What are the risks vs the benefits of the vaccine? What have they seen in their practice so far this flu vaccine season?

At this point we've done what we always do- the rest of the family gets the vaccine in the hopes of protecting the non-vaccinated egg allergic family member. We see the allergist in two weeks, though, and this is on my list...

...again...

Is it so hard to come up with a flu vaccine without growing it on chicken eggs? Sigh...

Some related posts for those of you dealing with this for the first time:

Flu Vaccine Recommendations and Egg Allergy
Flu Vaccine for Egg Allergic
Still Confused About Egg Allergy and Flu Shots?
Guidelines for H1N1Vaccine and Egg Allergy
Flu Shot Season

Food Allergy Study Turns Off Allergic Reactions in Mice

Can the body be trained to tolerate proteins that cause food allergy reactions? Researchers at Johns Hopkins are one step closer to answering that question. They have found a way to turn off food allergy responses in mice. By feeding a modified food protein to food allergic mice, scientists discovered that the immune system was able to tolerate the offending food. Within five days, the mice were able to tolerate the food in an unmodified form!

Pretty cool, huh?

Researchers are now looking to see if there is an implication for humans. Check out the full article in Science Daily.

I love to read about this kind of progress and remain hopeful that this is another piece of the puzzle leading toward a food allergy cure.

Overprotective Parents and Increase in Food Allergies

I'm trying not to take offense with this article, but it's hard not too. I'm going to go with the idea that the writer was looking for a sensational headline to increase readership.

Yeah, that's it.

Here's the thing, medical doctors have been telling parents to delay introduction of certain foods and to read all labels to avoid any trace of highly allergenic foods. We've been told that our food allergic children could die if they eat even a tiny amount of their allergen. And people have died.

I realize that the latest research is beginning to show a different picture. Recent studies are showing that it may be better to introduce major allergens at a young age. This news article talks about a recent article in The Journal of Allergy and Clinical Imunology. A study involving 2500 infants showed a lower incidence of egg allergy for the babies introduced to egg before 12 months.No other major allergens have been studied.

For now, stay in touch with your pediatrician and allergist about what is best for your baby or child.

Overprotective parents...geeeesh...we're just doing the best we can with the information we have. We're just being the best parents we can be.

Food Allergy Summer Camps

The Food Allergy and Anaphylaxis Network (FAAN) is pursuing a $250,000 grant from PepsiRefresh to open camps in 11 cities for children with food allergies and their siblings.

FAAN needs our help.

The top two ideas get the money. This idea, called Camp TAG (The Allergy Gang), is currently ranked at 25.You can vote every day through Oct. 31. Let's get the word out and vote today for our kids with food allergies.

VOTE HERE.

Food Allergy Friendly Baking: The Divvies Bakery Cookbook

 
Lori Sandler is the founder of Divvies Bakery and the author of the Divvies Bakery Cookbook. She's also a mom of a child with dairy, egg and nut allergies, so everything in her gourmet bakeshop and in the cookbook are free of those major allergens.

I've shopped the Divvies online store for holiday treats (their BingGo! chocolate bars rival a Hershey bar and make a great Halloween treat) and I was pleased to find Divvies cookies in our Walt Disney World hotel when we vacationed there recently. The candies and cookies are, in a word- YUM!

Recently I had the opportunity to check out Lori's new cookbook. It is filled with over 70 recipes designed for bake sales, class parties and at-home celebrations.

Flipping through the pages the first time, my eye instantly caught the "Oh Fudge" recipe...
"Oh Fantastic" is more like it! No one would ever guess this is a dairy-free fudge! It's super-easy to make and satisfies that daily (okay, hourly) chocolate craving.

We also tried "Your Favorite Applesauce" after apple-picking this week-end. This is another easy one. The smell of baked apples wafting through the house soon led everyone to the kitchen to try some of this treat.

"Andrea's Mom's Granola Bars" was another hit. The Craisins® and chocolate chips added just the right flavors to this bar recipe.

Most of the recipes in the book call for ingredients found in anyone's pantry. This is a great baking book to have on hand. And get one for Grandma too so she can make cake and cookies that are safe for her grandchildren and worry-free for you.

Food Allergy E-Show Features Cybele Pascal

Check out a new e-show (that means a show that can be watched on your computer) by Cybele Pascal.

As the mother of a food allergic family and an author of two allergy-friendly recipe books, Cybele brings her knowledge to the world wide web.  Each month, The Eat Freely Show will feature recipes, as well as demonstrations and tips for those dealing with food allergies. The first episode is available now and offers a recipe for allergy-friendly pancakes.

Our family has enjoyed recipes from both of Cybele's cookbooks. Tune in each month for more great ideas in living with food allergy.

Epinephrine Use to Treat Food Allergy or Insect Sting Reactions

State laws vary in regards to whether non-medical personnel may administer epinephrine to a person experiencing anaphylaxis due to an allergic reaction. Recently, the WMS (Wilderness Medical Society) addressed this issue. The organization has taken the position that:

• outdoor instructors authorized to treat anaphylaxis should be trained to administer epinephrine
•  legislative change on the federal level should establish uniform protection in all 50 states

So, see that second bullet point? That means families need to know what the law in their state says about non-medical personnel administering epinephrine. In New York, for example, teachers and camp counselors are permitted to administer epinephrine after proper training. Other states strictly prohibit this. Good Samaritan Laws may cover people in some areas.

Ideally, a person with a known allergy that may lead to an anaphylactic reaction carries their own medication and self administers if necessary. That is not always possible though, especially for children experiencing a reaction. The laws need to protect helpers who may need to assist someone in a life-threatening situation.

Read the full WMS position and know the laws in your state.

Food Allergies and Bullying Study Results

Forty-three percent of school-age children with food allergies report bully waving allergen in their face in a threatening manner. Twenty percent of food allergic students report the teasing and harassment came from teachers and staff.

What?!?!?

Read the results of this study, conducted by Mount Sinai, then talk to your child. Explain to young children what bullying is and what they should do if they feel threatened. Develop a plan with older children about how to handle a bullying situation. Share this research with your school nurse, guidance counselor, teacher and administrators. Bullying is never okay. Bullying with food allergens is dangerous and needs to be stopped immediately. Does your school have an anti-bullying policy? Does the policy mention food allergy? The authors of this study say it should.

Food Allergies at School: More Tips

As the new school year gets underway, do not forget about "special area" teachers when creating a food allergy management plan.

• Food allergens may be hidden in art supplies. Make sure the art teacher is aware of your child's allergies and contacts parents if there are any questions about supplies used in the classroom.
• In music class, many instruments are passed around for children to try. Find out about the cleaning of these instruments. Ask for a specially designated set for your child if you are especially concerned.
• Computer kepyboards may harbor food allergens. Does your child (or teacher)need to wipe down  the keyboard before beginning computer class?

From classroom to cafeteria to art room and school bus, cover all spaces and places in whatever food allergy plan you develop with your child's school.

Food Allergies and Halloween: Time to Get Ready

For those of us with food allergic children, planning ahead for Halloween is essential. My little guy goes trick or treating around the neighborhood. When he gets home, we take out all the candy with milk, eggs, peanuts and tree nuts.

All the candy that isn't labeled goes too.

Now, here's where my preparation pays off. I have lots of great treats to put back in the bag. Allow shipping time and order safe treats today. Check out these suppliers, with direct links to Halloween treats:

Divvies
Amanda's Own
Enjoy Life
AllerNeeds
Chocolate Emporium
Peanut Free Planet
Premium Chocolatiers
Vermont Nut Free

Most of these sources have order deadlines in mid-October to guarantee shipping in time for the big day. Did I miss any of your favorite Halloween go-tos?

Dairy Free Chocolate Chips

I do love chocolate! When I realized that my Ghiradelli milk chocolate chips were no longer an option in our new world of food allergy, I was a bit panicked. Well, maybe panicked is a bit strong...

no, taking away my favorite chocolate chips did cause panic!

So, we embarked on a tasting of dairy free chocolate chips.  I was not interested in mini-chocolate chips. I prefer the regular size for most of my baking. Fortunately I discovered Barry Callebaut chips. I swear to you, you'll never miss the dairy in these chips. I order them from The Allergy Grocer, as they're not carried in stores. This works great, except:

•  the chips can't be shipped during the summer months due to high temps and melting
• they're awfully expensive, especially with the shipping...

but who can put a price on a good chocolate chip?

Imagine my excitement recently while shopping at Wegmans's, when I noticed their store brand of chocolate chips is dairy free. I bought a bag, giddy at the thought of saving on those shipping costs. We had a blind taste-testing in our home that night.

No comparison. Barry Callebaut wins out.

So, I'll keep ordering multiple 5 lb. bags of Barry Callebaut chips from The Allergy Grocer, but I'm always willing to do more taste-testing!

Any suggestions?

By the way, Allergy Grocer offers free shipping on orders over $100. Go ahead, you can do it...

Food Allergy Show on Lifetime Televisions's Balancing Act

Tomorrow morning, Tuesday, Sept. 21, The Balancing Act, on Lifetime will feature a show on food allergies. The show airs from 7-8 am ET/PT. Set your TiVo, your DVR, or plan to grab a cup of coffee to watch it live. The program will feature Leandro de Armas, this year's Heart of FAAN Child Ambassador, and an interview with a father who lost his son as the result of a fatal food allergy reaction. FAAN’s Vice President of Research and General Counsel, Maria Acebal, will also speak. A demonstration of how to use an epinephrine auto-injector is part of the presentation.

This show is a great opportunity to inform and educate grandparents, friends and others about food allergy. Spread the word!

Food Allergy Friendly Basball Games and Food Allergy Contest

More and more peanut allergic individuals can sing, "Take me out to the ball game!" thanks to efforts of many to encourage ballparks to provide seating free of peanuts at some games. The Cleveland Indians are the latest to offer this opportunity. They're even power-washing and thoroughly cleaning that are of the stadium prior to the start of the game.

Part of the money from the tickets sold at the Indians Sept. 26 game will go to FAAN for food allergy research.

Go team! For more peanut-aware games, visit my friend Jennifer B's list.

Last day to enter: Ian's Party Give-Away. Be sure to join in the fun for an opportunity to throw a party with treats from Ian's.

Food Allergy and Teenagers

We've heard it before- death from anaphylaxis peaks during the teenage and young adult years.
This statement is enough to stop any parent cold in their tracks. After protecting our precious children for so many years, it's horrifying to think that they will be casual about their food allergies.

 A recent study in the U.K. involved questionaires and interviews of young people between the ages of 11-18 with food allergies. The research sought to understand the challenges faced by this group. The preiminary results of this study are out.

It seems that teenagers are not concerned with "may contain" labels, thinking it unlikely the food contains the allergen. They take thier epinephrine only if they think there may be a risk of a reaction. Many do not now what to do if they have a reaction.

We should not let this information shoch us into inaction. Instead, use it to have a dialog with your children. They must carry their medicine with them- ALWAYS. They must not eat anything that may be unsafe. They must know the steps to take if they think they may be having a reaction. Hook your tween/teen up with FAAN Teen where there is conversation among peers about how to manage food allergy during this critical time of development.
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You only have until this Friday to enter the Ian's Food Give-Away.

Food Allergy Friendly Restaurant: PF Changs

How great is this announcement? To recognize National Celiac Disease Awareness Day, PF Changs introduces another gluten free menu item- Triple Chocolate Mousse Mini-Dessert. This makes 29 gluten- free items in all. Check out the Gluten Free portion of their menu to find other great choices.

Plus, the very first sentence in PF Chang's "Nutritional Information" section states,

"Before placing your order, please inform a manager if a person in your party has a food allergy. Additionally, if a person in your party has a special dietary need (e.g., gluten intolerance), please inform your manager at the beginning of your visit. We will do our best to accommodate your needs."

I like it and hope other restaurants follow with similar accomodations. Have you had expereince eating at PF Changs with food allergy? Please share!

And, don't forget, you only have until this Friday to enter the Ian's Food Give-Away. Enter today!

Food Allergy Cookbook: Cooking for Isaiah

Silvana Nardone is Editor-in-Chief for Rachel Ray's magazine, Every Day With Rachel Ray. She is also the mother of a child who must avoid gluten and dairy. And, like all mothers do when they find out their child must avoid major food groups, Silvana started reading food labels differently and began cooking and baking differently. She has compiled her tried and true recipes, all of which are gluten and dairy free, into a new cookbook, Cooking for Isaiah. I recently had the opportunity to look through the book and try out many of the recipes.

First off, I must say, the book contains gorgeous pictures. From candid family shots to carefully orchestrated portraits of food, you can feel the love and deliciousness ooze through the pages. Another mentionable, is the descriptions which make up the titles of each recipe. This is not a book where one will find "banana pancakes". Oh no, this book has a recipe for "Banana Pancakes with Warm Cinnamon Goo". Now, that conjures up a whole different image, doesn't it? How about "Roasted Red Pepper-Crusted Salsa Meatloaf Pie with Tortilla Chip Crumbs"? No question about what's in this dish either. You'll salivate just reading the titles.

I made several recipes from the book. In our family, we can eat gluten and wheat, but we need to avoid eggs, along with dairy. Some of the recipes I followed exactly, and others I made the necessary substitutions.

Some of our favorites were Silvana's "Rosemary-Garlic Roast Chicken with Root Vegetables" (so easy and so satisfying) and "Sloppy Joe-Stuffed Potato Skins (perfect game-day fare). The "Spinach and Roasted Vegetable Salad with Balsamic Vinaigrette" is perfect as an entree' or a side dish.

One night for dessert, I made "Penny's Apple-Brown Sugar Coffee Cake". It was heavenly. I must point out that I did use all-purpose wheat flour and I used eggs, as called for in the recipe. One morning I tried the aforementioned "Banana Pancakes with Warm Cinnamon Goo". I used all-purpose wheat flour and Egg Replacer®. The end result was pasty and gummy. This may be a recipe where there is less margin for substitutions.

All in all, I enjoy Cooking for Isaiah. It is certainly perfect for those who need to avoid gluten and dairy. I found it very easy to substitute wheat flour for the gluten-free flour recipe provided in the book. It may be less easy for those with egg allergy to make some of the recipes as many require multiple eggs. The book however does contain dozens of recipes that don't call for egg at all, or only use one egg, which is often easy to substitute. I always appreciate a cookbook that isn't filled with dishes slathered with cheese. and while this book does use nuts, often those can easily be omitted.

So, for all of us who have had the experience of saying to the doctor, "So, what can he(she) eat?", Silvana has provided another resource to help us make great food everyone can enjoy. you can find more info and recipes at her site, Dish Towel Diaries.

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Don't forget, you only have til this Friday to enter the Ian's Food Give-Away. Enter today!

Food Allergy Give-Away: Ian's Natural Foods Party Package Contest

The folks at Ian's Foods are offering a chance for Food Allergy Assistant blog readers to win an Allergen Free Food Party package to include Ian's pizza or chicken nuggets- enough for 14 people. They even provide the plates, utensils, napkins, invitations for each winner to send to guests, and fun stickers and tattoos.

It's a party in a box and sure to be fun for your family and friends!

Our family recently had the opportunity to try Ian's chicken tenders. They are free of wheat, gluten, dairy, egg, soy and nuts, but not free of flavor. Truly, they are yummy! I also love that they don't contain hydrogenated oils, refined sugars, preservatives or artificial colors or flavors. They are simply chicken with a satisfying crunchy coating.

Ian's Foods offers all natural, organic, allergy friendly foods for kids. Search by allergen and check out their products.

So, how do I get in on this awesome party give-away you ask? Here's what you need to do in 3 simple steps:

• Check out the Ian's Food contest rules.
• Sign-up for Ian's Super Fit Kid program.
• Post a comment on this blog. I'd love to hear about how you deal with the food restrictions in your family, but really any comment will do, "You're the best", "Have a great day", "I love a free contest"...whatever comes to mind.

You have until Friday, Sept. 17, 2010 to enter. Winners will be notified by Sept. 24. Good luck!

Food Allergy Support Group of Minnesota

Over seven years ago, nine families started a support group in Minnesota for people dealing with food allergy. This group has become one of the most active in the country. For food allergy families living in Minnesota, resources and events like the Food Allergy Resource Fair, to be held Sept. 25, 2010, are available at little or no cost. This Resource Fair, their fourth annual, brings food allergy vendors together with families who can try out new foods and products. Children have the opportunity to explore "under the sea" with the crew at Underwater Adventures, while their parents have an opportunity to learn at the  "Ask a Doctor" station. The Fair is free and open to the public.

For those who do not live in the Minnesota area, a look at the Food Allergy Support Group of Minnesota website provides answers to many food allergy questions and concerns. From  how to handle a new food allergy diagnosis, to accommodations that should be expected for food allergic students, the site is packed with useful tips and tools.

Thank you to all those behind the scenes powering the resources and tools of the Food Allergy Support Group of Minnesota. You provide a valuable service to MN families and others across the world.

Food Allergy Cookbook

I love cookbooks. I really love cookbooks with fabulous pictures. I really, really love a cookbook with fabulous pictures that is free. Even better, this free fabulous cookbook is filled with healthy, allergy friendly recipes.

It's a blue ribbon winner.

We have Alisha Fleming at One Frugal Foodie and Go Dairy Free to thank. She whipped this book together in two weeks after putting out a call for recipe submissions. An amazing accomplishment...

So, what are you waiting for? Check it out, download it and start creating your fabulous dishes.

Food Allergy Labels

You gotta love mom-inspired ideas!

Check out these simple and easy to make labels by mom and designer Kori Clark. They are simple to read and attention-grabbing- just perfect for grandparents, babysitters, older siblings and young children with food allergies.

Thanks for sharing Kori!

Food Allergy and 504 Plans at School

As I prepare for our annual 504 meeting with our school later this week, I am reminded about how far we have come. It was only in 2008, that Congress expanded the definition of who is eligible for federal protection. Now, individuals are protected- even if they don't suffer a disability all the time.

Prior to 2008, parents had to fight for any accommodations for their food allergic children at school. It was at the discretion of the school district how food allergy would be handled. When my child with food allergies entered school 5 years ago, we did not have any type of formal written agreement. The school did allow him to carry an EpiPen® (beginning in kendergarten) and a special food allergy table was established in the cafeteria. After a disappointing experience in 2nd grade, where he was excluded from making gingerbread houses with his grade due to his food allergy, we insisted on something more formal. We were offered an IHP, an Individualized Healthcare Plan.

The IHP was a document between us as parents and the school nurse. It was a good start, but not enough, as it didn't include key players within the school system like teachers, bus drivers and even the facilities and maintenance department (they're the only ones who knew the ingredients in the soap in dispensers near school sinks).

Enter last year and our first 504 Plan. We held a group meeting- parents, nurse, principal, guidance counselor, classroom teacher and head of facilities for the school district (also in charge of our bus company contract). Together we completed an individualized document to best meet my son's needs. This year my son will join the meeting and we will all work together to update the 504 Plan as needed.

The 504 Plan makes everything much easier because everyone, including the student, knows what they are responsible for. I like this recent article about 504 Plans for those who aren't familiar with federal protection for food allergic students.

 Are most of you using 504 Plans or do you use other documents or tools at school?

Food Allergy Ambassador Promotes FAAN Walks

Have you seen the 2010 Heart of FAAN Ambassodor, 7-year old Leandro speaking up about food allergies. He's got a PSA promoting the upcoming Miami Food Allergy Walk. While there, check out the 2010 Delaware FAAN Walk video.

FAAN walk events have begun.

The organization is 1/3 of the way toward their fundraising goal. Walks are scheduled in dozens of cities and there is even an online virtual walk.

Are you participating in a FAAN Walk this year? Let us know!

Food Allergy at School

Check out Linda Coss's article, "Attack of the Killer Peanut Butter Sandwiches". It offers a clear explanation to teachers and school administrators about how we all need to keep kids with food allergies safe. Linda encourages parents to share this piece with school officials when planning for the upcoming school year.

Allergy Book for Children

Allergy Tales: Making Friends

I recently had the opportunity to read Allergy Tales: Making Friends. This book is one of several written for, and about, children with food allergies. Author, Carey Shoemaker is the creator of ALLERGYONBOARD, an organization dedicated to promoting empowerment and positive self-esteem for children with food allergies.

Making Friends is the story of a young boy who moves to a new town. He worries that his food allergies may get in the way of making new friends.

I love the positive message in the story. Elementary school children will be able to read this book themselves- and it's not directed only at children with food allergies. It helps all children understand that food allergies are just one part of a whole person.

I think this book would be a great classroom or school library gift. It would also be a great tool for school nurses, guidance counselors or teachers who may be educating a classroom about food allergies.

We all work hard to balance the risks of food allergy with the message that our food allergic kids can, and should, participate in regular childhood experiences. Books like this one help show all children that food allergies are manageable, and that everyone has special things about them.

Has anyone else read Making Friends with their child?

Flu Vaccine Recommendations and Food Allergy

The FDA has approved flu vaccine for 2010-2011 in the United States. Vaccine is expected to be available beginning in September 2010. This year's vaccine will protect against 3 strains of influenza, including H1N1, which last year required a separate shot. The brand names and manufacturers are:

• Afluria, CSL Limited;
• Agriflu, Novartis Vaccines and Diagnostics
• Fluarix, GlaxoSmithKline Biologicals
• FluLaval, ID Biomedical Corporation
• FluMist, MedImmune Vaccines Inc.
• Fluvirin, Novartis Vaccines and Diagnostics Limited
• Fluzone and Fluzone High-Dose, Sanofi Pasteur Inc.

As flu vaccine is cultured in egg, there are risks for those with egg allergies. I list the names and manufacturers here because the composition of the vaccine varies according to manufacturer. It may be helpful to contact your doctor's office to find out which brand they will use allowing you to check the manufacturer website and read the package inserts.

As stated in the recently released "Recommendations of the Advisory Committee on Immunization Practices", "

hypersensitivity reactions after receipt of vaccine are caused by the presence of residual egg protein in the vaccine). Although influenza vaccines contain only a limited quantity of egg protein, this protein can induce immediate hypersensitivity reactions among persons who have severe egg allergy. Persons who have documented IgE-mediated hypersensitivity to eggs might be at increased risk for allergic reactions to influenza vaccine, and consultation with a physician before vaccination should be considered.

A regimen, involving desensitization, has been developed for administering influenza vaccine to those with egg hypersensitivity.

This is a tough call for parents of egg allergic children and adults with egg allergy. There has been a lot of chatter on the topic on this blog and others.

Last year, our family got the vaccine, except for my egg allergic son. Instead, we chose to request a prescription for an antiviral drug (like Tamiflu®) to have on-hand in the event of the sudden appearance of flu symptoms. Another option is prophylactic use of antiviral agents, where antiviral drugs are taken over a period of time to protect against the flu.

This year...I don't know what we're doing. Recent reports indicate low risk of reactions when the flu vaccine was administered to those with egg allergy.

...uh huh, but this is my child....

Where are all of you with this decision?

Egg-free vaccines are available, but not yet approved in the U.S. Soon we may not have to make these tough choices.

Food Allergy Conference

FEAST (Food Allergy, Eczema, Asthma, Support Team) will hold their first food allergy conference on Saturday September 25, 2010 in Seattle Washington.



Linda Coss will  be giving the conference keynote address, “What You Need to Know about Food Allergy Management.” In this presentation she'll talk about some of the things that are in her “How To” book, such as recognizing and treating an allergic reaction, avoiding the dangers of cross-contamination, and more. In addition, she'll be discussing how parents can handle all of the day-to-day issues in such a way that their child grows up “well-adjusted” in spite of having potentially fatal food allergies.

Please spread the word about this conference. For more information, or to register, visit the conference website.

I received a related note directly from Linda:

As with all of my talks to the food allergy community, I will not be asking for a speaking fee for my participation in this conference. If you know of another volunteer-run food allergy support organization such as FEAST that needs a speaker for a conference, please let them know that I consider it an honor to be able to help other parents. All I ask is that the organization pay for my actual travel costs.

Food Allergy Desensitization Programs

Okay, its controversial, but I'm keeping a close eye on this. Dr. Richard Wasserman, a pediatric allergist in Dallas TX, has been using desensitization to treat food allergy in his private practice. Some patients have had great success, others, not so much. Food desensitization is handled in much the same way as traditional allergy therapy. Someone allergic to cat, dust, mold or oak trees is given increasing amounts of their allergen in the form of an allergy shot. Over time, most people can better tolerate the allergen. In Wasserman's practice, someone allergic to milk or eggs can be given tiny doses of the offending food in increasing amounts.

Dr. Wasserman admits that many allergists find his food allergy treatment too risky. There are a few other practices throughout the U.S. who perform oral desensitization for food allergy. However, most desensitization studies are currently in clinical trials.

Wasserman reports that the program takes place over many months and costs about $5000. A few insurance companies cover the cost.

Does anyone have direct experience with this treatment for food allergy?  I'd love to talk to some food allergy families who've contemplated, or gone through, a program like this.

Food Allergy and Dietitians

A new study by Jaffe Food Allergy Institute, at Mount Sinai School of Medicine concludes that pediatric dietitians self-reported their proficiency is only moderate when it comes to food allergy. Dietitians would prefer, and certainly benefit from, more training on food allergy.

Several years ago, our allergist's office hired a dietitian for individuals and families with food allergies. I set up an appointment looking for information on calcium and protein sources for our dairy, egg, nut allergic child. At the time we were also avoiding wheat, soy and corn and I was struggling with preparing balanced, nutritious meals and snacks. During the appointment, I was given hand-outs on specific food allergies. That's about it. She offered little helpful information and I felt like I educated her more than the other way around.

I'm not blaming the dietitian. I just think she was hired due to her credentials and wasn't given satisfactory training in food allergy. There is a need for dietitians who are food allergy savvy. Fortunately ELL and other organizations are stepping up to train dietitians.

Recent similar studies of school nurses and pediatricians have also shown they have limited, and sometimes incorrect, knowledge of food allergies. Those of us in the food allergy circle can help by educating our own school nurses and doctors. Rather than feel upset over their lack of knowledge, pass on relevant research, books and food allergy conference/workshop information. We can all play a role in education.

Food Allergy Back to School Guide

Yeah, yeah, I know it's still July, but it really is time to think about back to school if you're sending a food allergic child to school this fall. Here are some steps to take now:

• Contact the school to find out what paperwork is required for your child to have access to life-saving medication.
• Schedule a check-up with the allergist. Bring required school paperwork to the appointment for the allergist's signature. It's easiest if you fill out the portions pertaining to emergency contact information in advance. Many schools require the doctor to complete the treatment portion. Some doctor's offices charge a small fee to complete and sign forms.
• Get prescriptions for epinephrine as extra medications will stay at school.
• Meet with the school principal and nurse before school begins. Let them know what you need in terms of staff training, access to medications, lunchtime procedures and access to special foods for school celebrations or emergency situations.
• Use this time to make sure your child is educated about his/her food allergies. Review the rules of eating away from home and how to identify when extra help is needed. Make sure your child knows who to go to within the school if they need help dealing with their food allergy.

Have I missed anything? Do you have other ways to get ready for school?

So, get that paperwork, schedule those appointments and sit back and enjoy the rest of summer vacation with your kids!

Probiotics and Allergic Diseases

Results are out for a new study that had pregnant and breastfeeding moms drinking probiotic milk. Their babies were followed for 2 years. The results show a 40% drop in the incidence of eczema. At this point, there was no signifigant decrease in the rate of allergy and asthma rates, but these children will be followed to the age of six in a follow-up study.

As asthma, allergy and eczema are the triumvirate (like that big word? It's Latin for 3 things that go together) , this study gives some important clues into the role of probiotics and allergic disease. Probiotics are live lactic acid bacteria that can be added to milk and some foods. There are many types of probiotic bacteria strains, so check with your doctor if considering trying probiotics as a way to prevent eczema for newborns.

Reliable Tests for Food Allergy Diagnosis

Skin tests and blood tests are the standards for initial diagnosis of food allergy. Unfortunately, neither are very reliable. I don't know about you, but when the doctor calls and starts reading off blood test results to me, I hang up the phone feeling more confused than ever. If the "almond number" rose from 2 to 15 in the past year, is my child way more allergic to almonds now than last year? What does, "off the chart for dairy" mean?  I've never felt like these numbers give me helpful information.

While the "gold standard" for diagnosing food allergy is the food challenge, it is helpful to have accurate information going into the challenge.

Christopher Love, an MIT engineer, is on the trail of a more precise way to measure food allergies in a blood test. His new technology, recently reported in Lab on a Chip, can analyze individual immune cells. Instead of detecting antibodies, like the current blood test does, Love's system screens the patient’s immune cells for small proteins known as cytokines. Immune cells such as T cells produce cytokines when an allergic response is initiated, attracting other cells to join in the response. Those cells are then exposed to the potential allergen for a precise measurement.

Research continues and human trials are the next step, but I'm hopeful that Love's work will allow those of us who deal with food allergies the abilibty to make better ecisions based on helpful and accurate information.

Food Allergy Research Funded

Last Wednesday, the National Institutes of Health announced that the Consortium of Food Allergy Research (CoFAR), established in 2005, will be funded for five more years. This is a 29.9 million dollar grant and is great news for those affected by food allergy. From low allergy peanuts to polyphenol-enriched apple extract to desensitizing people to their allergens, there is incredible research happening in the area of food allergy right now.

"We are pleased to continue our support of CoFAR, NIAID’s major program dedicated to exploring the causes of food allergy and developing new treatment and prevention strategies," says Daniel Rotrosen, M.D., director of the Division of Allergy, Immunology and Transplantation at NIAID. CoFAR plans to expand research into the genetic components of food allergy and broaden research into disorders such as EoE.

This is much needed money for scientists to continue to unlock the puzzle of food allergy. After a LONG dry spell, food allergy is finally getting the attention and funds to address causes and treatment. That's great news for millions of people!

Allergy Medication: The EpiKey

Epipens® and Twinjects® are a wonderful medical device that save lives of those experiencing an anaphylactic reaction due to food, insect sting or latex allergy. I also find them to be bulky and I worry about my child carrying the medicine as a teen and young adult. It turns out someone else was worried about that too. TCB Medical Devices has developed the EpiKey, a small epinephrine device that fits on a key chain.

The EpiKey was created by Thomas C. Beller, MD., an allergist in South Carolina. Dr. Beller hopes this device will save lives with its small size and ease of use. It's on a fast-track for FDA approval.


I'll keep you posted.

Food Allergy App

Another helpful tool for people dealing with food allergies is on the horizon. Expected out in mid July 2010, NutriSleuth iphone App allows users to plug in dietary requirements for an instant "yes" or "no" reading within seconds of scanning a product's barcode. Individualized profiles allow users to determine if the food is allowed for each family member. It even offers alternative choices!

Aahhh...simplified grocery shopping...

Food Allergy Reseach

How about this grandma who burst into action when her grandson was diagnosed with food allergies?. Lita Indzel Cohen started a foundation, FARI (Food Allergy Research Initiative), basing it in the lab at Philadelphia College of Osteopathic Medicine, where she serves on the Board of Trustees.

The goal of FARI is to study food allergy and develop a treatment for it. They've been making progress using immune modulation to decrease the severity of allergic responses in peanut allergic mice.

 Hopefully FARI research will lead to treatment and a cure for Lita's grandson and many others who deal with food allergies.

As more pieces of the puzzle are added, hopefully appropriate food allergy treatments will emerge. Thanks for your contribution, Lita!

Food Allergy Cooking Show on Oprah Network?

Oprah begins her OWN TV debut in Jan. 2011. Her casting call brought in oodles of entries and millions of votes. In the cooking category, "Cooking Allergy Free with Dee", soared to the top with over a million votes. Dee is off to Hollywood to convince Oprah, and the other powers that be, that her show deserves a slot.

I'm thrilled to see so much interest in a show like this. Dee is a mother of four. Two of her kids have multiple food allergies. She's like many of us as she tries to find delicious meal, snacks and treats for her children, with the added challenge of avoiding many major food groups.

Good luck, Dee!

Common Sense for Food Allergies

I heard on the news this morning that a recent study in the Archives of Pediatrics & Adolescent Medicine shows that changing to a later start time for high school students is good for adolescents.

 Makes perfect sens to me. Years of research has shown that the body clock during the teen years shifts to going to bed later and getting up later. We know this and should use this information wisely.

What does this have to do with food allergies, you may ask?

Well, this study seems like common sense to me. I don't believe we've used common sense for food allergies. Allergic to pollen? Get regular injections of minute doses of pollen to desensitize the body to pollen. Allergic to milk? Avoid it forever.

I've never thought that made sense. We do it in our house because that's the doctor's orders, but it doesn't seem like good common sense. Since getting the blood test results for my allergic child last week, I'm even more convinced. After 10 years of strict avoidance of multiple foods, all numbers are up- by a lot. My child is not out-growing any of these allergies. As a matter of fact, things are heading in the wrong direction.

This isn't good enough any more. I'm hopeful about  a cow's milk immunotherapy study published recently in the Journal of Allergy and Clinical Immunology. This study involved placing cow's milk protein on unbroken skin in an effort to desensitize people.

Just yesterday, DBV Technologies got the go-ahead from the FDA to begin human clinical investigation of peanut desensitization. Trials begin this month in six medical centers in the U.S.

Avoidance isn't working. Desensitization makes common sense when it comes to food allergy. I recognize there are risks involved and I certainly do not recommend desensitization at home right now. But, let's all keep talking to our allergists and pushing for something better than "strictly avoid".

Stay tuned. We're starting to use common sense in food allergy treatment.

Food Allergy Support

Food Allergy Initiative has an extensive list of food allergy support groups in the U.S. as well as internationally. Helpful for those newly diagnosed, support groups also benefit those more experienced through expert speaker presentations and advocacy opportunities within the community. It is always helpful to learn from others with similiar experiences. Check out a local support group today.

More Food Allergy Protection

Have you heard about Plane Sheets? These seat covers are perfect when flying with a food allergic passenger. Available in disposable or washable forms, Plane Sheets are the brainchild of husband and wife team, Leslie Danelian and Rick Berge. During their long distance courtship, they made themselves a plane seat cover when they realized how unsanitary plane seats can be. They realized that others may be interested in the product and created a company to sell them.

I think they're a great idea for movie theater seats and other public chairs where food residue may accumulate, causing the risk of a food allergy reaction.

Check out the great patterns and colors and pick up a few for the special food allergic person in your life. Hmmm...maybe a few child-friendly patterns may be in order for our food allergic kids...

Baked Milk and Egg Food Challenges

We met with the allergist last week. At the top of my list was to talk about food challenges for baked egg and milk. What I found out was quite encouraging.

She told me they've done many challenges for these foods over the past few months and nearly all have been successful. There are now dozens of children and adults in their practice who are successfully eating foods that contain milk and egg that has been heated to a high temperature. The most recent research, she said, is showing that those who eat baked milk and egg on a regular basis may get rid of all milk and egg allergy.

Woot!

We're going to give it a go this summer. She wants to start with egg first, using the angel food cake recipe used at Mt. Sinai for these type of challenges. It contains 12 eggs and will be baked at 350 degrees for 40 minutes. I'm a little nervous after a nerve-wracking and unsuccessful egg challenge a year ago, but I am feeling hopeful.

I'll keep you posted!

Food Allergy Blog Carnival

Hmmm...There was only one food allergy related post submitted for this edition of the Blog Carnival.

In that case, you're stuck with Rational Jenn and me.

• There's a lot of hype about the development of a hypoallergenic peanut. Many people seem to think that this is the scientific development we who live with peanut allergy have been waiting for. I respectfully disagree.
• Have you heard about apples and their role in decreasing egg allergy reaction? Check it out.

It's encouraging to see so much research and promising results in food allergy.

ADDENDUM:  Thanks Colette for re-submitting your post. I didn't get the first one, but it's a great post, so I want to make sure it's included. Take a look at Learning to Eat Allergy Free for some information on EE.

To submit a post to the next food allergy blog carnival, sign up here.

Have a great day!

Food Allergy Cure With an Apple a Day?

The Journal of the British Society for Allergy & Clinical Immunology reports on a promising study with implications for food allergy. Egg allergic mice were fed a polyphenol-enriched apple extract and then underwent a food challenge for egg. The results showed the apple extract reduced allergy symptoms. A polyphenol is an antioxidant that occurs naturally in some plants and tends to prevent or neutralize the damaging effects of free radicals.

The role of polyphenols is also being studied in peanut allergy.

I don't claim to understand it, but I like it. The hope is for human trials to be conducted after the positive results of the mice study.

Food Allergy Friendly Recipe

Just in time for grilling season, I'll share one of our favorite chicken marinade recipes. I throw the chicken breasts in a container or zip-top bag with these ingredients as soon as I buy them. After I add the other ingredients, I make sure I grill (baking works too) them that day or the next. If not, it all goes in the freezer for an easy yummy meal another time. Check out my site, foodallergyassistant.com, for more allergy friendly recipes.

Marinated Chicken
free of dairy, eggs, peanuts, tree nuts, wheat and soy
• 1/4 cup cider vinegar
• 3 tablespoons mustard (the kind from a squeeze bottle)
• 3 cloves garlic, peeled and minced
• 1 lime, juiced
• 1/2 lemon, juiced
• 1/2 cup brown sugar
• 1 1/2 teaspoons salt
• ground black pepper to taste
• 6 tablespoons olive oil
• 6 skinless, boneless chicken breast halves

• In a gallon size reclosable bag, mix the cider vinegar, mustard, garlic, lime juice, lemon juice, brown sugar, salt, and pepper. Add the olive oil. Place chicken in the mixture and marinate 8 hours, or overnight.
• Preheat an outdoor grill for high heat or preheat oven to 375 degrees.
• Place chicken on the prepared (lightly oiled) grill, and cook 6 to 8 minutes per side, until juices run clear or bake for approximately 40 minutes until internal temperature reaches 180 degrees. Discard marinade.

Low Allergy Peanut on the Way

US researchers have been able to remove some of the compounds in a peanut that cause allergic reactions. US Professor Soheila Maleki, from the Agricultural Research Service, presented preliminary findings at the European Academy of Allergy and Clinical Immunology last Monday. Professor Maleki says they hope eventually to breed a peanut that will "lessen the development and the severity of the allergic response to peanuts".

You can read a summary of the project. Two thumbs up on this one!

Food Allergy Lingo When Talking to School Administrators

Bookmark the Illinois State Board of Education's Nutrition information page for a thorough index of federal laws and food allergy resources. No matter where you live, it's important to know the laws that have been created to keep food allergic school children safe. The summer is a great time to educate yourself and to begin to meet with school administrators to discuss the needs of your child. Be prepared to request a 504 Plan or an IEP or an Individualized Healthcare Plan. There are many options, but only you and your allergist know the best fit for your child.

Thanks Nut-Free Mom for the head's up on this information.

Food Allergy Tips

After 10 years of dealing with food allergies, even I find some great tips. Onespot Allergy founder, Elizabeth Goldenberg, shares some spot-on techniques for living safely with food allergy.

Did you learn some new tips, too?

Enjoy Life Helps Food Allergic Consumers

"Don't Worry, Eat Happy" is Enjoy Life's slogan. I love it and wish I could feel that free most of the time. It's hard to find safe food for someone with food allergies. Enjoy Life has created a Survival Guide to help anyone who follows a special diet.

Check out their great information on a variety of food allergy topics.

While I'm at it, I'll plug their great dairy-free chocolate chips, available in the specialty section of my local grocery store. Now that makes me happy!

Peanut Allergies and Airplanes

The US Department of Transportation is seeking restrictions on the serving of peanuts on board airplanes due to the increasing number of people with peanut allergies. The peanut industry is not happy with the recommendations. They (correctly) point out that people are allergic to tree nuts, milk, wheat, soy and other foods and no one is calling on a ban of those items.

Okay, can we all just play nice here?

Peanut dust causes an allergic reaction in some who are highly sensitive. Could the airline industry just be accommodating in special cases? People and families who deal with food allergies know what they need. For example, when we fly with peanut, tree nut, milk and egg allergies, I ask to pre-board to wipe down the seating area. I've also had no trouble when requesting that peanuts not be the in-flight snack served aboard our flight. Others may require other accommodations and my hope would be that airlines could meet all reasonable requests.

Here's what the DOT is asking, followed by the peanut industry response.

Food Allergy Guest Post

Thank you to Jacob Maslow of Allergy Be Gone for this guest post linking food allergy to toxins in our environment.

Toxins and the Rise in Food Allergies

When asked why food allergies are on the rise, New York State Licensed Acupuncturist, Henry Zhen-Hong Lee, stated, “It’s because of all the antibiotics that animals have been given for so many years, and because of the harmful effects of pesticides and a large number of other chemicals that find their way into our food sources.”

Some may ask what these chemicals have to do with the rise in food allergies. To get a better understanding of the severity of the environmental toxin problem and food allergies, here is an excerpt from an article posted at Mercola.com:

Laboratory tests commissioned by the Environmental Working Group have detected bisphenol A (BPA), a plastic component and synthetic estrogen, in umbilical cord blood of American infants.

Nine of 10 randomly selected samples of cord blood tested positive for BPA, an industrial petrochemical.

It should be noted that BPA has been connected to an ongoing list of serious chronic disorders, including asthma, cancer, and many other illnesses creating life-long consequences.

To further emphasize this point, the article explained that the results of the testing found 232 chemicals in the 10 newborns. The evidence is overwhelming and alarming: our children are exposed to dangerous substances that can affect the immune system before birth.

The Connection Between Toxins in our Food and Food Allergies

The body is an amazing and complex organism. It is actually designed to detoxify itself under normal conditions. But, with environmental toxins bombarding us in addition to our natural detoxification processes, the liver is overworked and overloaded. This, though, is just a piece of the puzzle connecting toxins to the rise in food allergies.

Add to this, the digestive problems that are created with the unavoidable toxins, in sources such as fast foods and genetically modified foods, and you have another wrench in the works. The digestive system is what makes the body function. This wrench interferes with the breakdown, absorption and metabolism of nutrients creating a drop in the nutritional properties that support the immune system.

Since the immune system is part of the body’s detoxification system, the lack of proper nutrition and the invading toxins reduce the immune system’s ability to function efficiently . . . or normally.

With a weakened immune system working overtime to sort out and destroy so many dangerous toxins is it any wonder that it malfunctions and begins to attack foods that are mistaken for dangerous substances, thereby contributing to the rise in food allergies.

Sources:
The Daily Green
Immune SystemEtc.com

Submitted by Jacob Maslow, http://www.allergybegone.com

More Allergy Meds Recalled

The net has widened for the original medication recall of several prominent McNeil Consumer products. The original recall included Benadryl® and Zyrtec®. Now add PediaCare Allergy and Cold® to the list of medicines that shouldn't be used. Check out the additional PediaCare products on the list and clean out the medicine cabinet.

I received a check in the mail from McNeil Consumer Care for $41.00 after I reported five recalled medicines from our medicine cabinet. I'll be filling out another report as the school nurse informed me that the Benadryl® I'd sent into school is also on the list.

I'll add it to my to-do list. I hope that McNeil Consumer and other pharmaceutical companies are being super vigilant about what is in their products. As consumers, we place our trust and our lives, as well as the lives of our children, in their hands. Recalls like this shake my trust to the core.